Sun Sentinel Editorial Asks: Where Are The Adult Autistic Voices?

Categories: Health
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The "neurodiversity movement" doesn't get a lot of press. But in the closing hours of "Autism Awareness Month" -- or April, as it's often known -- neurodiversity got an unexpected shot of love in Nichole Brochu's Sun Sentinel column, which she outsourced for the occasion to filmmaker Todd Drezner.

Drezner has an autistic son, and has made a film called Loving Lampposts which explores the ideas and motivations of those on two seemingly irreconcilable sides of the autism debate. By far the larger and louder group is comprised of those who view autism as a disorder in need of cures and treatments. Arrayed against them is a smaller and much less famous group comprised largely of people with autism, who insist autism is a natural variation on human neurology. This latter group is the "neurodiversity movement." (There is considerably more consensus in the latter group than in the former, which is painfully divided between those who seek science-based treatments for autism and those who seek to cure it with chelators and castration drugs.)

In his editorial, Drezner asks why the loudest voices in the various autism debates seem to belong to the parents of autistic children, rather than from autistic adults? He writes:

Maybe we don't want to imagine our disabled kids as disabled adults. The obsession with 'recovering' and 'curing' children from autism is really an obsession with making our kids "normal" enough to function in the world. When we imagine them as disabled adults, we worry that they will be alone, unable to make friends or support themselves. So instead of listening to autistic adults, we tune them out...

The problem is that by ignoring autistic adults, we miss the most important thing that they have to teach us: It's possible to lead a meaningful, fulfilling life as an autistic person. It may not be exactly "normal," but it can still be a satisfying life.

Of course, there are other reasons we hear from the parents of autistic children more often than from autistic adults -- that the majority of those ever diagnosed with autism are still quite young; that parents scared to death by autism will naturally be more voluble than autistic adults who are sanguine about the condition; etc. But as quiet as the voices of autistic adults might seem -- and by all means, not all of them are actually quiet -- Drezner makes the point that these are the voices most in need of a good hearing.
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Charbfc
Charbfc

Another must-see movie: "Wretches and Jabberers." Check the web site for a showing near you on May 12.

Mrbongos
Mrbongos

It's true that some autistic adults may never hold a job but to me the bigger issue is finding employers who will give those that can hold a job a chance. To that end I've discovered a wonderful new opportunity for my daughter when she graduates, nonPareil Institute, http://www.npitx.org or http://www.facebook.com/nonPar.... She may not become the next Bill Gates but she may.

Pappio
Pappio

Drezner says: "The problem is that by ignoring autistic adults, we miss the most important thing that they have to teach us: It's possible to lead a meaningful, fulfilling life as an autistic person. It may not be exactly "normal," but it can still be a satisfying life." My grandson id not "intellectually disabled." He can say words and express his needs, but right now he can't put words together in a sentence to express himself. To imply that he can lead a meaningful, fulfilling, satisfying life, right now is an hallucination. It's fine for Asperger's and high functioning autistic individuals to talk about neurodiversity, but no one is talking for the rest of the autism population, except parents who are scared to death about what lies ahead for their kids, some of whom are already adults. It's easy to talk about neurodiversity when you aren't all that diverse.

Sharon
Sharon

I suggest you watch the movie Loving Lampposts Pappio. You may feel differently after.

Serena
Serena

Are you really telling someone they may feel different about their own blood if they watch a movie/documentary? The Autism spectrum is so wide that one day it may in fact be several disabilities, not under one "umbrella". I'm hoping you don't mean what I think you mean (that ALL Autistic adults will lead meaningful, fulfilling lives). Not to be a pessimistic SOB (sorry) but it's just a fact that some people with Autism will NEVER hold a job but rather are nonverbal and get much more "pleasure" in life by hurting themselves. It's JUST. THAT. DIFFERENT. I am in no way trying to be harsh but feel that many people do not understand the complexity of it. Sorry..

deny saputra
deny saputra

Interesting, but too make many people confused with this problem

Amanda
Amanda

What exactly would make too many people confused? And with what problem, specifically?

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